Perceptions of parents of the impact of autism spectrum disorder on their quality of life and correlates: comparison between mothers and fathers - Université de Montpellier Accéder directement au contenu
Article Dans Une Revue Quality of Life Research Année : 2021

Perceptions of parents of the impact of autism spectrum disorder on their quality of life and correlates: comparison between mothers and fathers

Catherine Chabaux
  • Fonction : Collaborateur
Clarisse Chatel
  • Fonction : Collaborateur
David Cohen
Emmanuel Damville
  • Fonction : Collaborateur
Ludovic Gicquel
  • Fonction : Collaborateur
Renaud Jardri
Thierry Maffre
  • Fonction : Collaborateur
Alexandre Novo
  • Fonction : Collaborateur
  • PersonId : 1314131
  • IdRef : 241959160
Roxane Roxane
  • Fonction : Collaborateur
Marie-Joëlle Oreve
  • Fonction : Collaborateur
Didier Périsse
  • Fonction : Collaborateur
François Poinso
  • Fonction : Collaborateur
Julien Pottelette
  • Fonction : Collaborateur
Laurence Robel
  • Fonction : Collaborateur
Catherine Rolland
  • Fonction : Collaborateur
Marie Schoenberger
  • Fonction : Collaborateur
Sandrine Sonié
  • Fonction : Collaborateur
Mario Speranza
  • Fonction : Collaborateur
Stéphanie Vespérini
  • Fonction : Collaborateur

Résumé

Purpose: To compare mothers and fathers perceptions of the impact of autism spectrum disorder on their Quality of Life (QoL), we used the Parental-Developmental Disorders-Quality of Life scale (Par-DD-QoL). Method: The perception of QoL of mothers and fathers was compared for 130 pairs of parents of children with ASD and the associated variables were investigated. Results: Mothers perceived a significantly greater impact of ASD on their QoL than fathers. Parents perceived a higher impact of ASD on global QoL when their child's adaptive skills were low and when the level of aberrant behaviors was high. More precisely, the perception of QoL by the mothers was negatively associated with their child's internalized disorders, whereas the perception of QoL by the fathers was negatively associated with their child's externalized disorders. Neither the mothers' nor the fathers' perception of the impact on QoL was associated with their children's age or the severity of their autistic symptoms. Some parental factors, such as being members of a family association, having benefited from training in ASD and having experienced a disruption in professional activity were associated with a greater impact on their QoL. Conclusion: Our finding that the perceived impact of ASD on QoL differed between mothers and fathers argues for individualized psychosocial support. Moreover, the strong correlation between the child's clinical characteristics and the perception by parents of a higher impact of ASD on QoL should be seen as red flag concerning the needs of the parents in terms of social and educational support.
Fichier non déposé

Dates et versions

hal-03638589 , version 1 (12-04-2022)

Licence

Copyright (Tous droits réservés)

Identifiants

Citer

Christelle Vernhet, Cécile Michelon, Florine Dellapiazza, Cécile Rattaz, Marie-Maude Geoffray, et al.. Perceptions of parents of the impact of autism spectrum disorder on their quality of life and correlates: comparison between mothers and fathers. Quality of Life Research, 2021, ⟨10.1007/s11136-021-03045-3⟩. ⟨hal-03638589⟩
36 Consultations
0 Téléchargements

Altmetric

Partager

Gmail Facebook X LinkedIn More