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Article Dans Une Revue ERJ Open Research Année : 2015

Adherence to guidelines in idiopathic pulmonary fibrosis: a follow-up national survey

Emmanuel Bergot
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Jacques Cadranel
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Sylvain Marchand-Adam
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Résumé

A new survey coordinated by the French expert centres for rare pulmonary diseases investigated French pulmonologists' diagnostic and therapeutic practice for idiopathic pulmonary fibrosis (IPF) and explored changes since a previous survey in 2011-2012. From May 16 to August 30, 2014, 524 pulmonologists were contacted. Those following at least one patient with IPF were invited to complete a questionnaire administered by telephone or e-mail. 166 (31.7%) pulmonologists, 161 (97%) of whom had participated to the first survey, completed the questionnaire. Of those, 46% and 52%, respectively, discussed the cases with radiologists and pathologists. Out of 144 pulmonologists practicing outside of expert centres, 80% indicated referring patients to those centres. The 2013 French practical guidelines for IPF were known by 92% of pulmonologists involved in IPF, 96% of whom considered them appropriate for practice. The multidisciplinary discussion form for IPF diagnosis was known by 74% and considered appropriate by 94%. Diagnosis and management resulted from multidisciplinary discussion in 50% of the cases. About 58% of patients were diagnosed with "mild to moderate IPF" as defined by forced vital capacity ≥50% of the predicted value and diffusing capacity for carbon monoxide ≥35% of predicted. At the time of the survey, 31% of physicians were using pirfenidone to treat patients with "mild-to-moderately severe IPF" and 30% generally prescribed no treatment. Substantial improvement has occurred since the 2011-2012 survey with regard to knowledge of guidelines and proper management of IPF. Early diagnosis still needs to be improved through the network of expert centres.

Dates et versions

hal-01819805 , version 1 (21-06-2018)

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Vincent Cottin, Emmanuel Bergot, Arnaud Bourdin, Jacques Cadranel, Philippe Camus, et al.. Adherence to guidelines in idiopathic pulmonary fibrosis: a follow-up national survey. ERJ Open Research, 2015, 1 (2), ⟨10.1183/23120541.00032-2015⟩. ⟨hal-01819805⟩
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